A little over three years ago family, friends, and friends of friends from all over the world came together to help Marcelo recover after his hemispherectomy. This procedure was performed to eradicate a rare and debilitating form of epilepsy known as Infantile Spasms.Â Marcelo and his family are extremely grateful for everyone’s generosity. Since then, they all knew that when the time was right, they would find a way to give back to others with the same spirit that helped lift them up during their most difficult hour. That time is now.
Marcelo is extremely excited to introduce Project Marcelo, a charitable organization that focuses on helping children with neurological disorders.Â Project Marcelo will he holding its first event in the patio section of Blackbird Ordinairy. The event will consist of a three hour open bar with food, music and raffles.Â All proceeds will be used to help Diego, a boy who much like Marcelo did prior surgery, experiences an average of ten to fifteen seizures daily. Like Marcelo, Diego deserves a better life and the first step is to fly him from his native Santo Domingo to Miami for a week of medial testing at Miami Children’s Hospital. For additional details about Diego’s story and the $35,000 goal please visit the Project Marcelo Facebook page.